Skin is your body's largest organ and your protective covering. It keeps moisture in and defends against infection. It's as critical to your health as your heart and your brain.

What happens if it doesn't work?

At the EB Research Partnership, we think about skin every day because we are pursuing a cure for the genetic skin disease Epidermolysis Bullosa, or EB.

Skin is your body's largest organ and your protective covering. It keeps moisture in and defends against infection. It's as critical to your health as your heart and your brain.

What happens if it doesn't work?

At the EB Research Partnership, we think about skin every day because we are pursuing a cure for the genetic skin disease Epidermolysis Bullosa, or EB.

one day at a time

The Patients and Families

They handle the pain with grit, grace and hope.

one focus

The Doctors and Researchers

Collaboration among the leading EB researchers and scientists holds promise for better treatments – and ultimately, a cure.